Consent: Recruitment Database for Literacy Research
Participate in reading research!
The Recruitment Database collects contact information for families interested in participating in research studies on literacy with the Brain, Education, and Mind (BEAM) Lab at the MGH Institute of Health Professions (MGH IHP), led by Dr. Joanna Christodoulou.
You are being asked to complete the following survey because you have a child, and you are interested in participating in research studies pertaining to literacy. The survey includes a brief survey about your child's background, technology access, and your contact information. We expect the survey to take about 3 minutes to complete.
The information collected in this survey will be stored in a secure database and will be used for research recruitment purposes. Only research staff in the BEAM Lab at the MGH IHP will have access to the information you provide. By completing this survey, you agree to be contacted about research studies if your child is an appropriate candidate. If you are contacted, you have no obligation to participate. This survey is completely voluntary, and you can choose to stop at any time. Deciding not to participate won't affect medical care you receive from Mass General Brigham now or in the future. If at any time you decide not to include your child's information in this database, you can contact the researchers at beamstudies@mghihp.edu and your child's information will be removed. If you have any questions about the Recruitment Database, feel free to contact the Primary Investigator, Dr. Joanna Christodoulou, at beamstudies@mghihp.edu.
If you'd like to speak to someone not involved in this research about your rights as a research subject, or any concerns or complaints you may have about the research, contact the Mass General Brigham Human Research Committee at (617) 424-4100.
We are required by the Health Insurance Portability and Accountability Act (HIPAA) to protect the privacy of health information obtained for research. This is an abbreviated notice, and does not describe all details of this requirement (see Mass General Brigham Privacy Notice*). During this survey, identifiable information about you or your health will be collected and shared with the researchers in the lab listed above. In general, under federal law, identifiable health information is private. However, there are exceptions to this rule. In some cases, others may see your identifiable health information for purposes of research oversight, quality control, public health and safety, or law enforcement. We share your health information only when we must, and we ask anyone who receives it from us to protect your privacy. *Mass General Brigham HealthCare Notice for Use and Sharing of Protected Health Information http://www.partners.org/Assets/Documents/Notices/Partners_Privacy_Policy_English.pdf